I See Alex: A World Down Syndrome Day Reflection

As a parent in the Down syndrome community, World Down Syndrome Day is a time to reflect on the progress we’ve made and examine the opportunities we can leverage to increase authentic inclusion in our community.  

My son, Alex, is fairly well known in our community. But many people only see Alex as a person with Down syndrome, and they don’t stop to think about all the other amazing things that make him a terrific human. As his mom, and a passionate advocate, I see so much more.  

I see an independent young man, checking off his list at the grocery store. 

I see a funny guy with fantastic comedic timing, telling jokes to make the people around him laugh. 

I see a determined athlete who thrives on being part of a team. 

I see a young adult building skills, confidence, and independence through programs that challenge and support him. 

I see a hard worker who is eager for employment opportunities that suit his interests and don’t just check off boxes tied to his diagnosis. 

I see a caring son, brother, grandson, nephew, and friend, who is the first to call and make sure someone got home safely or ask if they had a good day. 

I see a proud member of his community, showing up, participating, and belonging. 

I see Alex. 

And yes, that includes seeing Down syndrome, too. It’s part of who Alex is. It brings its own kind of joy, perspective, and uniqueness to the way he moves through the world: the sincerity in his friendships, the pride he takes in his accomplishments, and the way he reminds the people around him to slow down and celebrate the little things. 

When people look at Alex and only see Down syndrome, they miss all the experiences, relationships, and opportunities that help shape the person he is. We’re not asking anyone to overlook the fact that he has Down syndrome. In fact, he’ll be the first person to remind you of it, especially when he’s trying to get out of doing something (that tactic rarely works at home!). But when you choose to not look past his diagnosis, you diminish all the hard work he’s done in his life to be seen as someone who is capable and worthy of being included.  

Programs like those provided by the communities of ElevateDD help make those moments possible. DSACO is creating spaces where people with Down syndrome can learn, grow, connect, and build meaningful lives in their communities.  

World Down Syndrome Day is a wonderful time for reflection and awareness, but it’s also a reminder that inclusion happens in the everyday moments that follow. When you meet someone with Down syndrome, I encourage you to look beyond the diagnosis and see the whole person. 

You’ll be glad you did. 

To learn more about programming opportunities available in Ohio, tune in to “Connecting to Down Syndrome Supports Across Ohio” on March 31, as part of ElevateDD’s ConnecteDD webinar series. Details: Webinars — ElevateDD.